Pontine Glioma- a diagnosis I had to explain to two different sets of parents over a time span of 24 hours. Not easy… not on the eyes, not on the mind and definitely not on the heart. Two smart, absolutely bright six year olds, with the promise of a whole lifetime ahead of them. A fall while playing. Sudden unexplained weakness of one side of the body. One visit to the OPD and a scan later, that promise of a future suddenly snatched from them without any mercy. A grave diagnosis. Poor prognosis. Tears. Disbelief. Lots of gasps. More tears. “Is there nothing we can do? No where we can take him/her?” The same questions. The same profound helplessness on both sides- the doctor’s and the parents’.
Finally when I did hit my bed at 3 am early morning the next day hoping there would be no more calls from the ward, my thoughts were racing. For all the exhaustion of that day, sleep evaded my eyes. The weight on my heart drove me to my knees. And this time the tears were mine. The mother’s fearful eyes, the father’s brokenness, their testimony of how they conceived after nearly 10 years of infertility and how special this child was, the child’s innocent unaware voice asking me if I wanted to hear him recite his favourite Psalm to me again. I felt so undone. Why these children? Why such terrible suffering? It felt like the carpet you were standing on was suddenly pulled away from under your feet and you had landed face forward on the ground. I didn’t have answers to the questions that were raging in my head and heart. But I knew and still know that God is good. He knows what He’s upto. But in that moment of grief, and multitudes of questions, and exhaustion- the only thing I could do was weep- weep not out of sympathy or pity, but just knowing that I was sharing their burden by pouring out my tears at heaven’s altar in intercession- not just for those two families, but also the ones I knew around me who were suffering- either from loneliness, depression, one physical ailment after another, torment for taking stands for their faith, lack of gratitude after years of work or just the feeling of hopelessness at unanswered prayers and unfulfilled desires.
Bringing them one by one to the Master with nothing but a broken heart for them in the wee hours of the morning, a beautiful revelation dawned on me. I had allowed them to be a part of my life, to have a share of my time, to make me care enough to be broken for them , to keep me awake at night praying for them.
In short, I had let them get to me. I had opened up my heart to love them. So much so that my needs and wants didn’t matter to me as much as theirs did!
These many many people who’ve walked in and out of my life. Some leaving footprints, yet others , scars – a patient, a colleague, a friend or a dear family member- yet they are deeply loved and immensely valued. In those moments my eyes were opened to see what loving a neighbour as myself looked like. If that was what only a minute finite portion of God’s love in me looked like, I can’t help wondering at how passionately, how fiercely, how unconditionally He loves me, and each one of you reading this. Oh how His heart breaks each time for us!
“To love at all is to be vulnerable. Love anything and your heart will be wrung and possibly broken. If you want to make sure of keeping it intact you must give it to no one, not even an animal. Wrap it carefully round with hobbies and little luxuries; avoid all entanglements. Lock it up safe in the casket or coffin of your selfishness. But in that casket, safe, dark, motionless, airless, it will change. It will not be broken; it will become unbreakable, impenetrable, irredeemable. To love is to be vulnerable.”
― C.S. Lewis, The Four Loves
I rose up from amidst those tears and prayers for mercy and healing, knowing that I’d given the best I could for those children who were my patients and their families , and to the ones around me whom I knew to be suffering- not my scientific prowess or skills as a paediatrician- I’d made a case for them to the King of kings, the Master of the universe, Jesus Christ, my Lord and Saviour- in love.
People may fail us, institutions may fail us, systems we fought to put in place might be ripped apart right before us, but there’s still scope for love.
So hey, are we capable of living a life of love, rooted in the faith and shielded by the Lord Most High, yet vulnerable? Despite and even if? I say….. Yes!!!
“You lead and I will follow
I know you hold tomorrow
Lord, make of me one big yes
Wherever this road takes us
Lord even if it’s just us
I surrender, Lord, it’s yes.. ”
( Yes, Larry Gatlin, Gaither Vocal Band)